Jack

Everyone has been asking how Jack is doing?  How does he cope with his brothers' illness?  Is he more mature?  Jack is often referred to as our unaffected son as he doesn't have Hunter Syndrome but he lives with it every day.  How can anyone really be unaffected?

A few months ago we met with Ohio's Senators and Representatives about Rare Disease, each meeting everyone kept inquiring about Jack, which was very kind and compassionate.

So lets find out how he's doing, here's a recent interview with him. We had to ease into some of the serious questions, and you'll see he's a man of few words!


Amy: If you could feed your brothers anything for dinner, what would you pick?

Jack: Gum

Jack and Nick

Alex & Jack, throw back to 2010

Amy: Do you have a favorite brother?

Jack: No. Both.

Amy: Do you want a sister?

Jack: No.

Amy: Are you going to be a Dad when you grow up?  How many kids will you have?

Jack: Yes, I am going to have 4 kids.

Amy: Wow, 4.  That's a lot.  Are you sure?  4.  That's how many I grew up with...

Jack: Yes 4.

Amy: What's your favorite sport?

Jack: Baseball

Amy: Do you want to be President?

Jack: Yes.

Amy: What platform would you run on?  What would you change, how would you get elected?

Jack: School would be 5 hours a day, 4 days a week

Amy: What do you want to be when you grow up?

Jack: A paleontologist.

Amy: I wanted to be an Oceanographer so I totally get that

Amy: What's the best way to make money?

Jack: Sell used golf balls.  Everyone wants the Pro V1s.  Those sell fast.

Amy: What's your favorite animal?

Jack: Buffalo

Buffalo by Jack

Amy: What's the best animal on the planet?

Duck Billed Platypus drawn by Jack

Jack: A duck billed platypus

Amy: What's your favorite seafood?

Jack: Crab

Nick chimes in Chicken Nuggets.

Amy: What's the best thing about living in Ohio?

Jack: Good schools

Amy: Is that what you really think?

Jack: Best roller coasters (Cedar Point)

Amy: If you could go anywhere in the world, where would you go?

Jack: England

Amy: If you could go anywhere in the United States, where would you go?

Jack: California

Amy: What would be your dream vacation?

Jack: Cedar Point for a week

Amy: If you ran a crabbing boat like on the show "Deadliest Catch", how many crab would you catch?

Jack: 3,313
Nick: 4

Amy: What's your favorite TV show and why?

Jack: Modern Family, it's so funny

Amy: Here's a multiple choice question:

Would you:

A.) Climb Mt. Everest
B.) Play with your x-Box all day
C.) Ride a wild buffalo

Jack: Climb Mt. Everest

Amy: How many days do you think you and "Man vs. Wild" could live in the woods?

Jack: 1,000,000 days

Now to your brothers

Amy: If you could do a fundraiser to raise money for MPS, what would you do?

Jack: Long Drive contest

Amy: What are you raising money for?

Jack: To pay for medical bills.

Amy: Well, sort of in a way...preventing more medical bills. We pay those ourselves.  We're raising money for research to cure MPS II, Hunter Syndrome.

Amy: Do you worry when Nick and Alex are getting their weekly infusions?

Jack at Lurie Children's Hospital in Chicago

Jack: No, but they have to get stuck with a needle every week.

Amy: Do you think it is hard when we go to Chicago and see all of their Doctors?

Jack: We have fun but I am sure they are sad.

Keeping It Real for Alex before the Clinical Trial in Chicago

Amy: Do you remember when Nick and Alex had surgeries?

Jack: Yes, I remember.  I felt bad for him.  Alex had a big cast on his neck.  

We cannot take credit for how wonderful Jack is, it's him!  He's such a great kid with a kind heart, and a calm, easy going demeanor.  He takes everything in stride and has such a positive attitude about pretty much everything in life including his brothers' illness.


We love you Jack!

The Cherrstrom Family