We're a family fighting to save two of our boys from MPS II, Hunter Syndrome. Hunter Syndrome is a rare genetic disorder. Our sons are missing an enzyme that allows their body to purge waste cells causing cells to build up and damage joints and vital organs. Our blog is about raising "rare" boys who have and will overcome much adversity and will have a unique perspective on life due to their experiences.
Sunday, October 19, 2014
The Long Drive II Survive Results are in! It was a tough competition! Thank you to everyone for your generous donations and support! Congratulations to the winners! The boys will be presenting your prizes in the coming weeks! xoxo The Cherrstroms