We're a family fighting to save two of our boys from MPS II, Hunter Syndrome. Hunter Syndrome is a rare genetic disorder. Our sons are missing an enzyme that allows their body to purge waste cells causing cells to build up and damage joints and vital organs. Our blog is about raising "rare" boys who have and will overcome much adversity and will have a unique perspective on life due to their experiences.
Friday, November 28, 2014
Raising Rare Boys - Cure Hunter Syndrome
Support us and the National MPS Society with our CrowdRise fundraiser, if we get 10 donations of any value starting December 9th we could be one of the fundraisers/charities entered to win $10,000 USD. Thank you!
https://www.crowdrise.com/raisingrareboys/fundraiser/amycherrstrom
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