Raising Rare Boys

We're a family fighting to save two of our boys from MPS II, Hunter Syndrome. Hunter Syndrome is a rare genetic disorder. Our sons are missing an enzyme that allows their body to purge waste cells causing cells to build up and damage joints and vital organs. Our blog is about raising "rare" boys who have and will overcome much adversity and will have a unique perspective on life due to their experiences.

Sunday, October 4, 2015

Raising Rare Boys Long Drive II Survive Competition Update!


Posted by acherrstrom at 7:29 PM No comments:
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Jack

Jack

Nicholas

Nicholas

Alex

Alex

Related Links

  • National MPS Society - MPS II
  • National MPS Society

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